DRIVE is a clinical informatics unit within Great Ormond Street Hospital (GOSH) that is focused on developing and evaluating technology to improve clinical outcomes and experience of care for our patients. DRIVE will look at emerging technologies such as artificial intelligence and virtual reality and explore their uses in healthcare settings. It is the first clinical informatics centre in the world to bring together world-leading clinicians, academic and industry partners to analyse data, merge insights and skills, and harness technological competencies that can be translated into clinical practice. As a technology and digital hub, this unique facility will be central to developing, testing and realising new ideas that can develop meaningful solutions for our patients.
GOSH is a world-leading hospital that has a rich history of being at the forefront of research and discovery. As the first children’s hospital in the English-speaking world, GOSH is an international centre of excellence and is committed to driving innovation.
GOSH has recently gone through a process of evaluating the current and future digital health needs of the hospital. GOSH has identified a need for focused digital health research and innovation, unmet by other hospitals in the UK. GOSH has invested in a comprehensive child health Electronic Patient Record (EPR) system and has established a state-of-the-art, cloud-based, fully scalable, secure and auditable Digital Research Environment (DRE). It is strategically essential for the trust to leverage maximum benefits associated with the EPR and DRE together with the creation of DRIVE to continue to make ground-breaking research discoveries and to provide the highest quality care for our patients.
The vision of DRIVE is to transform the way healthcare is delivered now and in the future. We seek to leverage the advancements made in digital technology to fuel life changing research, provide evidence-based clinical solutions and improve experience of care for our patients. We hope to improve clinical outcomes and experience of care for patients by harnessing innovative technologies and embedding them in hospital practice within the next five years. It is our hope to transform the way healthcare is delivered and to change the future of digital innovation in the NHS.
The DRIVE site is located on commercial premises on Bernard Street. The open-plan unit is approximately 6,000 sq. ft. and is ideally situated; being close to the hospital to facilitate integrated working with GOSH clinical staff, patients and families, but separate from clinical areas to allow research and development. Having a dedicated unit to bring together data scientists, clinicians, MSc and PhD students and commercial partners allows for unique collaboration and innovations to be developed and deployed for the benefit of our patients.
PATIENT AND FAMILY EXPERIENCE (PFE)
As part of the Research and Innovation Strategy, GOSH has procured a data store and digital research platform, called AnalytiXagility by Aridhia. The platform and other systems comprise the overall Digital Research Environment (DRE) to work alongside the new Electronic Patient Record (EPR) system.
The DRE will provide a rich source of data for clinical audits and will underpin pioneering research on diagnosis and treatment of complex and rare conditions. The DRE will support recruitment to clinical trials and also enable GOSH to capitalise on future digital developments such as artificial intelligence.
Digital Research Environment (DRE)
As part of our research and Innovation strategy, GOSH has procured a data store and digital research platform. The platform and other systems comprise the overall DRE to work alongside the new Electronic Patient Record (EPR) system. The DRE will provide a rich source of data for clinical audits and will underpin pioneering research on diagnosis and treatment of complex and rare conditions. The DRE will support recruitment to clinical trials and also enable GOSH to capitalise on future digital developments such as artificial intelligence.
The research platform provides a collaborative research environment for the management, visualisation and analysis of routinely collected de-identified clinical as well as other data. It incorporates both technical and process components, such as data security, de-identification, pseudonymisation and audit logs, which offer strong data governance by design.
A number of exemplar projects testing the capabilities of the platform in the context of GOSH and ICH are helping to identify areas for further development. The DRE capabilities are deployed in phases, which include data integration with the new EPR and other systems, advanced analytics, metadata catalogue, systems for app development and data capture, as well as providing training and engagement activities to support large numbers of research projects.
As part of the Research and Innovation Strategy, GOSH has procured a data store and digital research platform, called AnalytiXagility by Aridhia. The platform and other systems comprise the overall Digital Research Environment (DRE) to work alongside the new Electronic Patient Record (EPR) system. The DRE will provide a rich source of data for clinical audits and will underpin pioneering research on diagnosis and treatment of complex and rare conditions. The DRE will support recruitment to clinical trials and also enable GOSH to capitalise on future digital developments such as artificial intelligence.
Clinical Informatics Research Programme (CIRP)
The CIRP has been established to offer an academic programme in the increasingly important field of clinical informatics and will offer clinical/non-clinical PhDs, MDs and extended MSc projects. The programme will offer the opportunity for healthcare professionals, data and computer scientists to work alongside clinical specialists to generate a portfolio of technology projects. We intend that the programme will also help us identify the organisational support required for rapid deployment into clinical care. We aim to maximise collaborative working with our academic partners, such as UCL Computer Science / Turing / Farr, and corporate partners, focusing on development and evaluation of emerging digital technologies. This new academic programme will underpin many aspects of the work of the unit.
Industry Exchange Network (IXN)
DRIVE has partnered with the IXN, a programme at UCL, which enables students to use digital technology to solve clinical problems. Overseeing the projects within the DRIVE centre enables students to be mentored by GOSH clinicians and to work alongside our industry partners to develop, test and realize their ideas to quickly and effectively embed their innovations into clinical practice.
For many healthcare organisations, one of the biggest barriers to innovation is a change-resistant workforce. At GOSH, we are fortunate to attract the highest calibre of dedicated healthcare professionals who put the child first. We believe our staff, who work directly with patients everyday, have clear ideas about how to improve care for our patients. We strongly value their insights and are partnering with Barclays, who, through their Digital Eagles programme have successfully engaged with their staff to embed technology, deliver culture change and promote entrepreneurial skills in the workforce. We will encourage our staff to help us ideate, develop, evaluate and deploy the technologies that we create together. We aim to bring colleagues into DRIVE and together make the most of game-changing technologies, such as digital medicine, artificial intelligence and robotics, to improve clinical outcomes and patient and family experience. How we prepare the healthcare professionals of the future in order to embrace clinical informatics and emerging technologies will be an important element of DRIVE.
Patient and family engagement
We wish for our patients and their families to have the best possible experience of treatment and care at GOSH. Involving patients and families is essential to the research we conduct and the evaluation of projects in DRIVE. High quality research and evaluation depends on listening to the perspectives and priorities of children and young people, as well as their families and carers. We are committed to sharing information at DRIVE through events that connect our staff with patients and families. We work hard to capture patients’ and their families’ views to ensure all research at DRIVE is carried out in the best possible way for all current and future patients of GOSH.
We have partnered with best-in-class academic and commercial partners to leverage their insights, skills and expertise to work alongside GOSH clinical staff to create innovative solutions for our patients. We oversee all projects within the DRIVE unit to ensure our patients remain at the heart of all projects. With our patients in mind, we have adopted agile working practices, such as rapid prototyping, to enable our innovations are able to be deployed within GOSH in the next five years.